Saturday, September 9, 2017


Kavil Foundation and Stanford University
In 2017, researchers will track the biology and behavior of 10,000 New Yorkers for the next 20 years. Stakeholders express great concern over the highly detailed nature of the data we propose to gather and many scholars express concern that it will be difficult to identify participants willing to undergo this level of scrutiny.
And yet, as Glimcher points out, any person with a smartphone is already shedding this data. “I have my phone in my pocket right now,” Glimcher said in an interview with Science of Us. “That means AT&T knows my location within a meter — and I did not give them consent for that.” The Kavli HUMAN project, on the other hand, is going to politely ask permission first. The researchers promise “the highest possible degree of privacy and security,” with an encrypted security framework similar to that currently required of the HIPAA and FERPA acts. It cannot be sold; it cannot be subpoenaed.
And yet data breaches can and do happen.

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